Saturday, January 16, 2016

My daughter my hero...

I first talked to Hailee around 8 this morning and she told me that she got a good night sleep and felt a little better.  They stopped her IV at 8 this morning with the hopes of coming home.   As the day progressed that was not the case she got weaker, and weaker and shakier and shakier.  She again had trouble standing without help and felt like she was going to fall down as she stood up.  We all talked and decided it would be a good idea to stay another night.  She was not in a good place emotionally, understandably.  So I did what any mom would do, I went and got her her favorite food and dessert and brought her brothers and best friend to visit her.  That really helped bring up her spirits.  She is still very weak but a lot happier.  What really made my heart soar was among all of this health crisis, she texted me very excited that Pastor Saeed was freed today.  She said " mom God is so good"  Praise be to God!!!  I totally agree.  Praise be to God.  Praise him in the good times and bad.  She really is my hero.

Friday, January 15, 2016

What in the world....

Alright I know it has been a while but I really need to write about what has been going on.  This is a brand new year and I sat there on New Year's eve and said and I quote " this will be an amazing year, the best one yet".  I truly do believe this as when I walk with God, it is an amazing year.  When I follow him life is amazing.  However,  I am frustrated, yes frustrated.  Hailee is once again in the hospital this time for shakiness and weakness because of her Mitochondrial disease.  She is 14 and just went to school at our home school co-op and hung out with her friends there on Wed, and then she started feeling shaky and weak Wed night.  By yesterday she was really bad, her face was swollen and he eye was droopy.  She could not even walk unassisted.  She has been in the hospital since yesterday and had an IV since about 3 yesterday afternoon.  She is not much better and now they want to slow down her IV.  I don't understand why she isn't getting better.  Should I be doing something different?  Should she be on more supplements?  I just needed to rant. I feel better now.  Keep praying prayer warriors and for those of you interested she has her own blog you can follow.