Sunday, June 20, 2010

I just don't know how to feel...

We got the Independent Expert Evaluations back that we asked for through the school district. Keep in mind that I asked for these back in March and they were finally approved in May and completed last week. It was exhausting to have Josh go through these evals. but very important. We found out some pretty shocking info on him. Somethings I knew some I suspected but was very sad to see in black and white. He has Auditory processing disorder ( i knew that but the school district was fighting me on), Sensory processing disorder (which I suspected but was not shocked to find out), and that on top of being bipolar and all the other things, they found him to be borderline mentally retarded. With a IQ score of only 72. That was the part that was a Little shocking. I mean I knew that he was behind and developmentally delayed but borderline Mentally retarded. I was just not prepared for that. When I went to therapy last Thursday, Jaimee Josh's therapist said" I want to discuss the outcome of his neuropshyc eval." I was excited to find out the results. Then she broke the news to me. I could hear her say the words but I could not process them. She asked me " are you alright I know this is a lot to process". I said sure I am and played it off like I suspected this all along. The truth is that it knocked me over. I felt like I hit a brick wall going a hundred miles per hour. I still am having a hard time processing it. I mean it makes sense but how am I going to help him in this world. I know that this is still my sweet little guy that I have always known. He didn't change just because he got yet another label but somehow things where different. I was different. I just don't know how to digest all of this. To top off everything else we think his meds need to be adjusted again and we don't see his new neurologist until August. I hope this is the right doctor. I am running out of patience and options.

Wednesday, June 9, 2010

What in the world?????

This has been a world wind adventure to say the least. We saw the new psychiatrist in Temecula. He was very interesting. To make things short, let's just say we did not like him. I was entertaining the idea of just keeping him for medication purposes but God intervened and we got a phone call to say that this particular pshyc is longer accepting our insurance. coincidence? I think not. We are now going to see a neurologist at Loma Linda in August. I will let you all know how that goes. We have also been going through our independent expert evaluations for the school district. We have already completed the OT portion, we will finish the speech tomorrow and the neuro pshyc on Friday. I will be very interested to see what they have to say. Well Children call so I will update more later.