Well we had another EEG done in the hospital. He was in there from July 21-24Th. They found out that he is having focal seizures all over his brain. The "wonderful" doctors at Loma Linda put him on yet another medication called Topamax for his seizures. Well let me tell you that medication is awful. It made him a zombie. He did nothing but drool and cry. He lost speech and language abilities and the speech he has left is very mumbled and garbled. We have decided to slowly wean him off of this med. It isn't controlling his seizures and it is making him a zombie. We are also looking into the possibility of trying the GAPS diet. which may help him some. I feel as though no one is listening to me not one person in the medical community that something is so desperately wrong with my son. I know he has all of these labels but I feel like I am losing in bit by bit everyday. He started 1st grade today. This should be interesting, a full day with no aid. He was already just walking around the class and looking so out of place. I miss him.
