What in the world....

Alright I know it has been a while but I really need to write about what has been going on.  This is a brand new year and I sat there on New Year's eve and said and I quote " this will be an amazing year, the best one yet".  I truly do believe this as when I walk with God, it is an amazing year.  When I follow him life is amazing.  However,  I am frustrated, yes frustrated.  Hailee is once again in the hospital this time for shakiness and weakness because of her Mitochondrial disease.  She is 14 and just went to school at our home school co-op and hung out with her friends there on Wed, and then she started feeling shaky and weak Wed night.  By yesterday she was really bad, her face was swollen and he eye was droopy.  She could not even walk unassisted.  She has been in the hospital since yesterday and had an IV since about 3 yesterday afternoon.  She is not much better and now they want to slow down her IV.  I don't understand why she isn't getting better.  Should I be doing something different?  Should she be on more supplements?  I just needed to rant. I feel better now.  Keep praying prayer warriors and for those of you interested she has her own blog you can follow.